A Good Day (Minus Neck Weakness)

After a good ‘restart day’ yesterday, I am back to feeling content. Today I went out for breakfast at ‘Morrisons’’ Cafe and enjoyed a baby chino and cooked English breakfast. Afterwards I went back into the car to wait until my family bought me my pizza of choice from the ‘make your own pizza’ section – an essential for me who doesn’t like cheese on pizza-

-What can I say I’m autistic.

As well as other goodies for this evenings. Being out of the house, living life in any capacity -especially getting a nice meal! – is beneficial like never before as it makes me realise that when I get better, I have a lot to look forward to.

Last night my OCD was bad with intrusive thoughts and insecure worries that ‘everyone hates me including my family’, but after getting a bit of reassurance from family and a nice Goodnight text message – I happily went to bed and have been undisturbed with self-esteem issues and fears since.

When I got home (after walking up the dreaded house steps) I had a rest on my chair and then proceeded to do my task for the day: printing off some photographs.

I did print them off. I did get my printer out of the cupboard and I did manage to achieve my goal. The problem is I am currently laying on my bed with my materials still on the carpet because my neck felt like it was so fragile it could snap off.

I know that if I wait awhile my neck will recover and I’ll be able to move again – at least move enough to clean away the floor – but there’s something undeniably discombobulating about seeing myself in the mirror unable to move without feeling as though I’m going to go headfirst into my bedside table.

I had to text my Mum and ask her to come and clean it up for me. Part of you wonders when you send such a text at 19 years old whether or not your parents think your at it. I wish I was at it so to speak. Then I could get out of it and carry on with my life. Gratefully my parents have been very understanding and helpful and I am lucky.

Overall today has been very positive. I enjoyed my trip out and am very excited to tuck into my pizza, Coka cola and jelly tots tonight. It is my ‘shower night’ (I shower every second day) tonight which does make me feel apprehensive and nervous. Having a shower has become a battle between me and my body. I usually end up nearly falling over and taking hours to get ready. Despite my neck issues and the nervousness for my shower I definitely count today as a positive.

Restart Day

Today was my Restart Day where I tried to get myself sorted both in terms of my mood and my OCD/autism.

I feel a lot more positive about my life. I no longer feel ‘contaminated’ and no longer feel like anything is ruined by me. It’s not the same thing as giving into my OCD, more like appreciating that there are correlations between what I myself feel comfortable with due to my autism and a harmful coping mechanism. I will do a blog post in the future exploring this further.

For dinner my Mum made me gammon steak (which she cut up into strips) to allow me to eat easier. It was really nice and despite the chewing causing my jaw to still be tired – it was an improvement that allowed me to actually enjoy my meal! The frustration of being unable to gobble up my food, rather than spend hours at the meal table, was still there, but my overall happy attitude made all this seem inconsequential and I enjoyed my dinner.

Tomorrow my Mum is taking me and my sister to Morrisons cafe for breakfast and I’m very much looking forward to this.

It has been a success but of course I’m still feeling funny. My OCD is not brilliant but it is by no means the state it was yesterday and the day before that. I also still am finding my mobility a problem. I went out to the car today for a trip down the shops (although I didn’t go into the shop) and back which was good but I also struggled to get up off the toilet earlier this evening. It’s swings and roundabouts in terms of progress.

Perhaps my new anxiety is also due to my officially deferring from university for another year and all this floating anxiety is, at least in part, caused by the consequent sadness. It’s a bittersweet feeling that is also weighed down by my inevitable tiredness from lack of sleep over the last few days. If anyone has any experience with autism spectrum disorder/mental health problems/etc you’ll know that the chemical equation:

Lack of sleep + OCD/Insert condition —> Disaster

I am keeping myself collected and calm as much as I’m able and I hope that tomorrow after a good night sleep, I’ll find it even easier tomorrow.

My FND Journey So Far

My GP then suggested I may have Functional Neurological Disorder. I was then referred to the hospital for Neuro-physiotherapy. His thought was that the Vitamin B12 deficiency had caused my symptoms and my nervous system has gotten mixed up with how to send and receive signals to my body even when I’m no longer deficient in Vitamin B12.

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University Decision: Post-Making My Choice

Dear Diary,

I’ve chosen a course that in part surprised me. I know that I can excel at it and I am genuinely excited to get started!

Of course there are the wriggling doubts, the fears, the nagging voice in the back of my head whispering that I’ve made a huge mistake – which sucks but is also normal. I got into a fantastic course that may not have been my ‘dream course’ but is something that I love and can’t wait to begin.

So yes with the celebration comes slight mourning – mourning for a S1 girl’s dream and mourning for the countless other opportunities that every choice we make in life limits you to.

But despite some sadness and anxiety; I feel relieved. I have a clear view of what I’ve got to do and how I’m going to do it and that feels really good.

I am very happy and I think that this course will not only be badass, exciting and that guarantees a career; but will also make me happy in life.

Only time will tell but today is a good day and it requires a celebration – one preferably when I’m neither sunburnt or exhausted from adrenaline. One thing is for sure; I can’t wait to get started!

Take Care.

Medusa.

University Decision: Pre-Making the choice

Dear Diary,

The time is here – well a mere matter of hours away – for me to decide where I want to go to university and what course I want to take.

There are a few things for me to consider in the next short while. There are things to consider about both my capabilities my dreams and what the hell I want to do with the rest of my life.

I’m an insecure eighteen year old with autism and mental health problems; trapped in the mindspace of a primary one girl, who longs to be accepted and liked by the other kids in the playground. A girl who can’t understand why people don’t like her. I’m someone who lacks confiction in her decisions without letting on to the fact. I’m someone who still struggles to understand how she could possibly be autistic one day and on another day can’t touch her belongings because her OCD is too bad.

This is why I’m scared. I’m scared that I’m going to end up miserable in two ways:

Reason 1: I’m scared that by picking one choice I will be passing up on an opportunity I have always wanted and may never get again. I’m terrified that I am choosing based on fear of the unknown. That I’m using any excuse to not take a leap of faith and do something I’ve wanted to do since I was little. I’m afraid that I’ll end up filled with regret and anger at myself.

Reason 2: I’m scared that if I pick something and take a leap of faith it won’t work and I’ll be disheartened, sad and crushed. I’m scared that I’ll not be able to manage the course either by being not good enough at the course or by having a mental breakdown, or by both. I’m scared that I’ll miss an opportunity to discover what I want to do by rushing into an idea that could make or break me. I could take my time and see, try something and then if I can do it – move on to my dream course (if it remains that).

I’m so scared of regret, I have enough of it from my years of letting my OCD control my life and I don’t want to add to it. But whatever I do regret is always a risk.

I need to spend the next few hours thinking. Will post after I make my choice.

Medusa.

Ear Blockage & Stress

Dear Diary,

My ears are blocked. Both the right and left ear have blockages of wax but the left is especially bad. My ears have always been a problem for me but right now it’s been terrible. What’s more terrible is that I have exams at the moment.

I’ve been very sick recently. There is an intense pressure in my left year, so intense that I’ve been sick and have been experiencing dizziness. What’s more is that the pressure in my ears is making hearing other people extremely difficult. I can genuinely not hear out of my left ear at all aside from the occassional burst of tinnitus.

It’s been hard to go to bed. Usually I listen to ASMR to help me sleep but I can’t hear it out of the left ear and the sound reverberates from my right one as a result. It’s extremely upsetting and frustrating. I have exams to do and I am struggling to sit up.

I had my ears syringed yesterday but that only removed the outer wax and the majority was stuck there. I have to keep studying. I have to go to school tommorrow. Wish me luck.

Medusa.

Knowing My Limits.

Dear Diary,

I’ve come to the realisation that I’m not doing great at a subject I’ve been sudying for a year. I don’t want to quit it as I may aswell carry on to potentially recieve a pass but I’m not feeling great about it.

I keep thinking ‘I should have studied more’, ‘I should have done this – I was capable of doing this’ and ‘I’ve let myself down’. However in all these angry self-hating thoughts never have I allowed myself to think of the reasons why I’ve struggled.

The lockdowns, the not being able to do my routines, not being able to go to my appointments in person, feeling really unhappy and dealing with my OCD. All these factors and more have all added to my stress and inability to focus.

Despite knowing this, despite logically acknowledging that these things are true – I don’t believe it. I just feel bad. My brain hurts and I feel bad. I could be doing more but I’m going to go to bed.

Medusa.

To Make A Choice To Try

Dear Diary,

I had a choice today; a simple choice that could make a huge difference in my life.

I’ve been feeling like I don’t want to be here anymore for a few weeks now (not suicidal – just a wish to not exist). A feeling that if there was a magic button and I had a choice to remove myself from existence, I’d press it.

The world has felt bad and I’ve been feeling miserable. My OCD is bad, my self-esteem is bad and my anxiety is through the roof and whenever this happens a simple question goes through my mind “Things are always going to end up like this so what’s the bloody point?”.

I suppose it’s normal to be negative whilst being depressed but it still sucks. Knowing that I’m going to have to deal with my autism related OCD and anxiety for the rest of my life is horrible to think about and it hurts to think about.

Whilst being in this vortex of misery other aspects of your life gets sucked in too – aspects such as your schoolwork, your appearance and the tidiness of your room. As seemingly inconsequential as these three things seem, they all add up and lead to a very depressing situation.

So after all that; my choice came today. My exams are starting in the next week – exams I’m woefully underprepared for – and the thought of doing any studying felt impossible. It was physically and mentally straining to pull out my textbooks and open my laptop. I confess I nearly quit twice and I nearly threw my laptop in frustration.

But I chose to keep studying; and I ended up doing some good revision. Despite every part of me wanting to curl up in my bed and want to die – I chose to do something productive and it has made me feel better. Schoolwork feels that little bit less worrisome and I feel more in control of my life.

I’m still not feeling 100% – or even 50% but it’s a start and after today I want to keep trying.

I Feel Defective

Dear Diary,

DISCLAIMER: This is going to be a very depressing post. I’m feeling very negative surrounding my autism and differences.

Today I feel bad. I feel guilty for saying this because it’s not very positive but it’s how I am currently feeling and so I’m going to share it. I feel like a mistake of a human being. I don’t work properly. I have OCD, low self-esteem and I have autism.

It’s not even autism that makes me so wrong. My problem is myself. There is no escape from being who I am and it is becoming very difficult to deal with. The autism just adds to it.

I feel like a broken toy in a factory conveyer belt. I was the one mistake in a perfect batch of toys and no matter how hard the factory workers try, I can’t be fixed.

My brain doesn’t work properly and I’m feeling more and more aware of this fact every single day. I just want to be normal and I just want to be able to not be autistic for a day to see if what I’m feeling is autistic or just an average emotion.

My brain just doesn’t work properly. Explaining how or why is impossible – a bit like describing a colour to someone who can’t see. All I know is that there is something wrong with my brain and I can’t fix it.

I want the autism to be erased; like how the toy repairman from Toy Story 2 wipes over the signature of Andy’s name with paint, leaving him perfect. I want to be free to not have to constantly fight or give in to my OCD and I want the chance to be an average person who has the average social skills and an average brain.

It feels never ending today. It feels like I’m trapped in my own stupid brain that does not understand how to be a human. My brain does not work and consequently I do not work and there is nothing I can do except struggle.

But what do you do with the broken parts of a toy? Perhaps you make something new out of it. Or perhaps you chuck them in the bin. Time will tell.

Thanks for reading. I’m sorry if this is depressing. Bear in mind that I do not think there is anything wrong with being autistic or having mental health problems – I’m just kind of the personification of “Don’t let me get me” By P!nk today.

Today I just feel so desperately unhappy and it’s hard.

First Day Back At School After Lockdown

Dear Diary,

Today I started back at high school. The morning resulted in me being very positive (with a minor dent in my positivity due to catching my appearance in my iPhone camera) and I saw my friend. Additionally I am exempt from wearing a mask – an exemption I ignored until it was stated that we would have to wear our masks in class and I didn’t want to do that, so I got my lanyard out. Things were looking up.

For the first couple hours I happily read in the canteen socially distant from everyone. After a while I had a good conversation with a teacher surrounding a book I was reading. Everything was fine until lunch came and for the first time in many months I was sat down in the freezing cold outside with my best friend eating lunch. Lunch is hard enough on its own with OCD; being cold is unpleasant for anyone; But maintaining a conversation in person that was acceptable, even with a friend, for the first time in months felt like a disaster.

My social skills are at a low. I see my best friend and I say how much I missed them, giving them the latest news and listening to my friend say the same. After that I start rambling about politics, controversial topics and other societal issues because I am incapable of being a seventeen year old girl who is not autistic for five seconds. It reminds me of the time as a child where a friend visited my house and all I wanted to do was plan a book with them despite the fact that we were ten. But I digress, I feel really upset and frustrated with myself.

I want to blame my autism on this. I want to say that the autism made me do it akin to how the devil allegedly corrupts innocent people making them do things they otherwise wouldn’t – but I can’t. I want to blame my autism but I feel like I must blame myself. What’s myself and what’s my autism? Maybe the problem is separating the two.