My ears are blocked. Both the right and left ear have blockages of wax but the left is especially bad. My ears have always been a problem for me but right now it’s been terrible. What’s more terrible is that I have exams at the moment.
I’ve been very sick recently. There is an intense pressure in my left year, so intense that I’ve been sick and have been experiencing dizziness. What’s more is that the pressure in my ears is making hearing other people extremely difficult. I can genuinely not hear out of my left ear at all aside from the occassional burst of tinnitus.
It’s been hard to go to bed. Usually I listen to ASMR to help me sleep but I can’t hear it out of the left ear and the sound reverberates from my right one as a result. It’s extremely upsetting and frustrating. I have exams to do and I am struggling to sit up.
I had my ears syringed yesterday but that only removed the outer wax and the majority was stuck there. I have to keep studying. I have to go to school tommorrow. Wish me luck.
I’ve come to the realisation that I’m not doing great at a subject I’ve been sudying for a year. I don’t want to quit it as I may aswell carry on to potentially recieve a pass but I’m not feeling great about it.
I keep thinking ‘I should have studied more’, ‘I should have done this – I was capable of doing this’ and ‘I’ve let myself down’. However in all these angry self-hating thoughts never have I allowed myself to think of the reasons why I’ve struggled.
The lockdowns, the not being able to do my routines, not being able to go to my appointments in person, feeling really unhappy and dealing with my OCD. All these factors and more have all added to my stress and inability to focus.
Despite knowing this, despite logically acknowledging that these things are true – I don’t believe it. I just feel bad. My brain hurts and I feel bad. I could be doing more but I’m going to go to bed.
DISCLAIMER: This is going to be a very depressing post. I’m feeling very negative surrounding my autism and differences.
Today I feel bad. I feel guilty for saying this because it’s not very positive but it’s how I am currently feeling and so I’m going to share it. I feel like a mistake of a human being. I don’t work properly. I have OCD, low self-esteem and I have autism.
It’s not even autism that makes me so wrong. My problem is myself. There is no escape from being who I am and it is becoming very difficult to deal with. The autism just adds to it.
I feel like a broken toy in a factory conveyer belt. I was the one mistake in a perfect batch of toys and no matter how hard the factory workers try, I can’t be fixed.
My brain doesn’t work properly and I’m feeling more and more aware of this fact every single day. I just want to be normal and I just want to be able to not be autistic for a day to see if what I’m feeling is autistic or just an average emotion.
My brain just doesn’t work properly. Explaining how or why is impossible – a bit like describing a colour to someone who can’t see. All I know is that there is something wrong with my brain and I can’t fix it.
I want the autism to be erased; like how the toy repairman from Toy Story 2 wipes over the signature of Andy’s name with paint, leaving him perfect. I want to be free to not have to constantly fight or give in to my OCD and I want the chance to be an average person who has the average social skills and an average brain.
It feels never ending today. It feels like I’m trapped in my own stupid brain that does not understand how to be a human. My brain does not work and consequently I do not work and there is nothing I can do except struggle.
But what do you do with the broken parts of a toy? Perhaps you make something new out of it. Or perhaps you chuck them in the bin. Time will tell.
Thanks for reading. I’m sorry if this is depressing. Bear in mind that I do not think there is anything wrong with being autistic or having mental health problems – I’m just kind of the personification of “Don’t let me get me” By P!nk today.
Today I just feel so desperately unhappy and it’s hard.
Today I started back at high school. The morning resulted in me being very positive (with a minor dent in my positivity due to catching my appearance in my iPhone camera) and I saw my friend. Additionally I am exempt from wearing a mask – an exemption I ignored until it was stated that we would have to wear our masks in class and I didn’t want to do that, so I got my lanyard out. Things were looking up.
For the first couple hours I happily read in the canteen socially distant from everyone. After a while I had a good conversation with a teacher surrounding a book I was reading. Everything was fine until lunch came and for the first time in many months I was sat down in the freezing cold outside with my best friend eating lunch. Lunch is hard enough on its own with OCD; being cold is unpleasant for anyone; But maintaining a conversation in person that was acceptable, even with a friend, for the first time in months felt like a disaster.
My social skills are at a low. I see my best friend and I say how much I missed them, giving them the latest news and listening to my friend say the same. After that I start rambling about politics, controversial topics and other societal issues because I am incapable of being a seventeen year old girl who is not autistic for five seconds. It reminds me of the time as a child where a friend visited my house and all I wanted to do was plan a book with them despite the fact that we were ten. But I digress, I feel really upset and frustrated with myself.
I want to blame my autism on this. I want to say that the autism made me do it akin to how the devil allegedly corrupts innocent people making them do things they otherwise wouldn’t – but I can’t. I want to blame my autism but I feel like I must blame myself. What’s myself and what’s my autism? Maybe the problem is separating the two.
I doubt I’ve ever been sure how to act in conversation. I take on the role of who I think I should be in different circumstances. It never really works of course, there are only so many mannerisms you can copy from people in your life before your real opinions and thoughts are revealed.
Since my diagnosis I’ve noticed that I’m acting the way I think an autistic person should act. Try that for irony? I’m even being autistic about being autistic. These days in a difficult conversation I avoid eye contact, not because I hate it or feel uncomfortable looking people in the eye, but because I feel like people understand that I am uncomfortable. I play with my sleeve and avoid eye contact because when I do this adults who know about my diagnosis (which is most people) understand how I’m feeling. I take on the persona or role of having autism despite the fact that I actually have it. I know that many autistic people dislike making eye contact so I’ve adopted that in taking upon my role.
It makes me feel guilty, like I’m stealing from people but I can’t help it. It’s both subconsious and consious, I didn’t know I was doing it at first but then I noticed it worked. People could understand the obvious signs of distress especially how I usually make good eye contact and would understand that I was feeling stressed or upset.
I’m not good at figuring out what is the right thing to say, do or think. I struggle to understand people’s feelings sometimes and this makes me sad. I get angry with myself for not being able to decipher the correct things to say, do, act or think.
So what can I do? The truth is I’m not sure but right now I’m going to watch some YouTube and distract myself from being angry with myself.
My OCD is shocking today. I’ve broken my own rules by showering two days in a row for the sole purpose of pleasing my OCD. I don’t even care though; that seems completely irrelevent to me right now.
I can’t find myself caring enough to do anything right now. My parents are annoying me ( a sign I’ve not had enough sleep ) and I’m feeling frustrated by the fact that it seems life is going to take a lot longer to get back to normal due to COVID-19.
My printer is not working – which was the only thing keeping me calm and busy. Printing off photos and stickers for my sketch book was a happy distraction and coping mechanism but thanks to shoddy WiFi it won’t bloody work.
I just don’t care anymore again. I’m finding that challenging my OCD is not working when there feels like there is nothing to challenge it for.
And then like a sign from the heavens, a pesky moth flew into my bedroom. Scared of having a moth fly into my mouth whilst asleep or secretly die somewhere only to give me a heart attack when found three months later, I enlisted help to get it out of my bedroom. At first I called my Dad but he made it clear there was nothing he could do. Determined to rid myself of the moth I enlisted my nine-year-old brother’s help – though I had to make it clear stomping on it was not an option.
We managed to lure the creature into my en suite bathroom. I managed to catch it in a plastic sheet of paper and throw it out the window – only for the little shit to imediately fly back in again. Eventually my twelve year old sister joined the crusade and managed to single handedly remove the moth from my bathroom. Afterwards we all laughed and now my little brother is sitting in my room intensely telling me about his video game theories.
Even though I feel like crap right now – a half hour ago I was angry, upset and depressed and I’m still those things – but I feel slightly better. What I’m trying to say that sometimes life gives you lemons, other times it gives you moths. So make lemonade or go on a mission with your siblings to try and rescue a moth.
So I started my home learning experience today. Actually I didn’t start anything – that was the problem. I spent hours staring at my assigned work and barely wrote the date and title. I could not focus no matter how hard I tried, so I decided to have a break from my work today.
If only I could have a break from my brain. I’ve been compulsively washing my hands and mouth. The backs of my hands and my lower face have the rough texture of dry skin that is eerily familiar to when my OCD was at it’s worst. The dry flakes of skin caused by my washing aswell as my acne are what my OCD calls “contaminated” so I feel extremely uncomfortable in my own skin. Everything feels wrong and I want to throw something – or many things.
I can’t focus in my schoolwork and I can’t focus being in my own body. Everything in the world feels wrong and I feel wrong. Part of me wants to have a shower – to give in to my OCD to the extreme sense of not just washing my hands/face but having a full-on “decontamination” but I’ve spent too long training myself to only have a shower every two days.
The world is crazy right now. I want to go to a spa type place and get my skin sorted or at least helped. I want to go on holiday and relax in Center Parcs and most of all I want to go to my therapist and the autism support place I recently joined. I want to not feel like everything I own is going to be ruined by myself.
I’m trying to distract myself by listening to music or scrapbooking but when you’re high on OCD anxiety the sound from headphones or a speaker is too much of a sensory problem; the process scrapbooking is also very difficult when you are frightened of “ruining” everything you own.
I’m not sure what exactly, about the Christmas experience is the root cause of all my crippiling mental health problems during this time. Perhaps it’s the expectation to be happy, the overall hustle and bustle of Christmas or something else entirely but I every year find myself in a dark place.
My OCD is nowhere near as horrific at Christmas time as it used to be when I was younger but the ghosts of OCD Christmas’ past still haunt me. Not just the memories of being so unhappy and anxious, not just the saddness that I wasted so much of my childhood consumed with OCD but also because the similar, familiar feelings of anxiety, guilt and depression greet me again.
Today is the 19th of December and I’m off on my Christmas holiday’s, except all I’m feeling is guilt. I feel guilty for things I may or may not have said, done or felt during the darkest periods of my life. I feel guilty for not liking people for reasons I can’t completely remember. I feel guilty for my social failures then and now. I feel guilty for not being able to understand others’ feelings when I was eleven and undiagnosed.
I’m scared for Christmas. I’m scared that I’ll fall into old patterns and give in to my OCD so much so that it ruins my whole day. I’m frightened that I’m going to fall into a depression that never ends. I’m scared that I won’t enjoy Christmas.
I remember so many Christmas’ where I cried and washed my hands compulsively to the extend that they bled. I remember my shoulders aching with pain because I was holding myself in a way as to not touch certain things. I remember being so anxious and unhappy.
So what should I do? That’s the million dollar question. For now however I’m going to focus on not going into a coma of misery each hour until the feelings of stress, sadness, guilt and whatever else subsides.
Will update soon. Hope everyone else is feeling okay.
The exams for the second year in a row have been cancelled and I’m not sure how I’m feeling. On one hand I’m glad that we now know (kind of) what is going on. On the other, I’m scared about all the complex marking systems, I’m scared about the fact that the senior year students will likely have a shorter year since their are no final exams and most of all I am scared about leaving school, my friends and my routine.
This years exam results are crucial to either getting into or being rejected to university. The last year of high school means there are no do-overs next year for I will not be there anymore. This puts the pressure on regardless and the added distrust towards the Scottish Qualifications Authority since the disaster last year does not help.
I’ve been in school for the majority of my life – I’m used to school. I may not like it all the time, I may find it hard and I may find it impossible but I feel like I need it. The cancellations of the exams means that I’m going to have to deal with leaving the security of school. School is not a choice. It is mandatory and requires no life-changing decisions to be made. When I leave school I’ll have to make choices, make decisions and grow up and the exams being cancelled is the somewhat convoluted path my brain is taking to convince myself that I’m going to be facing my ‘school’ extensional crisis sooner.
I have a few good friends in school. I have every confidence that my best friend and I will keep in contact and that is brilliant but some of my other good friends and I will inevitably drift apart. It’s hard for someone like me who struggled her whole life to make friends, finally does and then realises that she will lose them to time and distance.
That’s life of course, people move on, they drift apart, a quote from a children’s book I used to like “real friends let each other grow up” rings true here. I thought I’d be in school forever as it often felt like it – but the truth is that it’s coming to an end. I’m going to have to accept that I’ll have to grow up, the announcement of the exams being cancelled further fuels my “growing up” anxiety and the only thing I can do is accept this.
For now though, I’m going to allow myself be sad for a little while.
I made some okay progress today all things considered. School is back tomorrow and I’m still feeling not 100%. My nausea is still coming and going a sure sign of my anxiety levels rising but I’ve not been sick as of yet and taking that as a good sign.
I managed to wear some jewellery today and eat crisps whilst on my phone which is something I used to be unable to do. I’m still a bit iffy around some things but I put foods I’d consider “contaminated” into the shopping bags whilst helping my Mum pack the bags at our local Morrison’s and I am currently wearing a dressing gown that came into contact with a dog treat box (another thing that my OCD considers as “contaminated”.
So whilst I’ve not been brilliant – I certainly have not been bad by any means. Little victories like today will help me get through tomorrow when I have to go back to the daily stresses of high school, socialising and homework and when I’m tired and not firing on all four cylinders. Well, we’ll see what happens tomorrow won’t we?