University Decision: Post-Making My Choice

Dear Diary,

I’ve chosen a course that in part surprised me. I know that I can excel at it and I am genuinely excited to get started!

Of course there are the wriggling doubts, the fears, the nagging voice in the back of my head whispering that I’ve made a huge mistake – which sucks but is also normal. I got into a fantastic course that may not have been my ‘dream course’ but is something that I love and can’t wait to begin.

So yes with the celebration comes slight mourning – mourning for a S1 girl’s dream and mourning for the countless other opportunities that every choice we make in life limits you to.

But despite some sadness and anxiety; I feel relieved. I have a clear view of what I’ve got to do and how I’m going to do it and that feels really good.

I am very happy and I think that this course will not only be badass, exciting and that guarantees a career; but will also make me happy in life.

Only time will tell but today is a good day and it requires a celebration – one preferably when I’m neither sunburnt or exhausted from adrenaline. One thing is for sure; I can’t wait to get started!

Take Care.

Medusa.

University Decision: Pre-Making the choice

Dear Diary,

The time is here – well a mere matter of hours away – for me to decide where I want to go to university and what course I want to take.

There are a few things for me to consider in the next short while. There are things to consider about both my capabilities my dreams and what the hell I want to do with the rest of my life.

I’m an insecure eighteen year old with autism and mental health problems; trapped in the mindspace of a primary one girl, who longs to be accepted and liked by the other kids in the playground. A girl who can’t understand why people don’t like her. I’m someone who lacks confiction in her decisions without letting on to the fact. I’m someone who still struggles to understand how she could possibly be autistic one day and on another day can’t touch her belongings because her OCD is too bad.

This is why I’m scared. I’m scared that I’m going to end up miserable in two ways:

Reason 1: I’m scared that by picking one choice I will be passing up on an opportunity I have always wanted and may never get again. I’m terrified that I am choosing based on fear of the unknown. That I’m using any excuse to not take a leap of faith and do something I’ve wanted to do since I was little. I’m afraid that I’ll end up filled with regret and anger at myself.

Reason 2: I’m scared that if I pick something and take a leap of faith it won’t work and I’ll be disheartened, sad and crushed. I’m scared that I’ll not be able to manage the course either by being not good enough at the course or by having a mental breakdown, or by both. I’m scared that I’ll miss an opportunity to discover what I want to do by rushing into an idea that could make or break me. I could take my time and see, try something and then if I can do it – move on to my dream course (if it remains that).

I’m so scared of regret, I have enough of it from my years of letting my OCD control my life and I don’t want to add to it. But whatever I do regret is always a risk.

I need to spend the next few hours thinking. Will post after I make my choice.

Medusa.

Miss Independent

Dear Diary,

It’s time to start being independent. It’s true, I’ve been over reliant on other people emotionally and in terms of looking after me.

During a phase of about 5 years I didn’t understand what having a family ‘meant’. It’s not that I didn’t have one, I’ve been lucky enough to always have a wonderful family but my brain failed to understand what that truly meant.

So after I realised ( with the help of TV funnily enough ) what it meant to be a family – I started over relying on it.

I’d spent so long not being able to emotionally interact with my family that when I finally learned, I went all in. I over rely on family members and people I admire to look after me. I try and do and belief things that exactly align with what they do and belief because I have a lack of self-identity.

It’s time to start taking care of myself. I’m an adult now and it’s time to take responsibility for the cleanliness of my room, my medication and other aspects of my life. It’s time to start being more independent.

Medusa.

Ear Blockage & Stress

Dear Diary,

My ears are blocked. Both the right and left ear have blockages of wax but the left is especially bad. My ears have always been a problem for me but right now it’s been terrible. What’s more terrible is that I have exams at the moment.

I’ve been very sick recently. There is an intense pressure in my left year, so intense that I’ve been sick and have been experiencing dizziness. What’s more is that the pressure in my ears is making hearing other people extremely difficult. I can genuinely not hear out of my left ear at all aside from the occassional burst of tinnitus.

It’s been hard to go to bed. Usually I listen to ASMR to help me sleep but I can’t hear it out of the left ear and the sound reverberates from my right one as a result. It’s extremely upsetting and frustrating. I have exams to do and I am struggling to sit up.

I had my ears syringed yesterday but that only removed the outer wax and the majority was stuck there. I have to keep studying. I have to go to school tommorrow. Wish me luck.

Medusa.

To Make A Choice To Try

Dear Diary,

I had a choice today; a simple choice that could make a huge difference in my life.

I’ve been feeling like I don’t want to be here anymore for a few weeks now (not suicidal – just a wish to not exist). A feeling that if there was a magic button and I had a choice to remove myself from existence, I’d press it.

The world has felt bad and I’ve been feeling miserable. My OCD is bad, my self-esteem is bad and my anxiety is through the roof and whenever this happens a simple question goes through my mind “Things are always going to end up like this so what’s the bloody point?”.

I suppose it’s normal to be negative whilst being depressed but it still sucks. Knowing that I’m going to have to deal with my autism related OCD and anxiety for the rest of my life is horrible to think about and it hurts to think about.

Whilst being in this vortex of misery other aspects of your life gets sucked in too – aspects such as your schoolwork, your appearance and the tidiness of your room. As seemingly inconsequential as these three things seem, they all add up and lead to a very depressing situation.

So after all that; my choice came today. My exams are starting in the next week – exams I’m woefully underprepared for – and the thought of doing any studying felt impossible. It was physically and mentally straining to pull out my textbooks and open my laptop. I confess I nearly quit twice and I nearly threw my laptop in frustration.

But I chose to keep studying; and I ended up doing some good revision. Despite every part of me wanting to curl up in my bed and want to die – I chose to do something productive and it has made me feel better. Schoolwork feels that little bit less worrisome and I feel more in control of my life.

I’m still not feeling 100% – or even 50% but it’s a start and after today I want to keep trying.

First Day Back At School After Lockdown

Dear Diary,

Today I started back at high school. The morning resulted in me being very positive (with a minor dent in my positivity due to catching my appearance in my iPhone camera) and I saw my friend. Additionally I am exempt from wearing a mask – an exemption I ignored until it was stated that we would have to wear our masks in class and I didn’t want to do that, so I got my lanyard out. Things were looking up.

For the first couple hours I happily read in the canteen socially distant from everyone. After a while I had a good conversation with a teacher surrounding a book I was reading. Everything was fine until lunch came and for the first time in many months I was sat down in the freezing cold outside with my best friend eating lunch. Lunch is hard enough on its own with OCD; being cold is unpleasant for anyone; But maintaining a conversation in person that was acceptable, even with a friend, for the first time in months felt like a disaster.

My social skills are at a low. I see my best friend and I say how much I missed them, giving them the latest news and listening to my friend say the same. After that I start rambling about politics, controversial topics and other societal issues because I am incapable of being a seventeen year old girl who is not autistic for five seconds. It reminds me of the time as a child where a friend visited my house and all I wanted to do was plan a book with them despite the fact that we were ten. But I digress, I feel really upset and frustrated with myself.

I want to blame my autism on this. I want to say that the autism made me do it akin to how the devil allegedly corrupts innocent people making them do things they otherwise wouldn’t – but I can’t. I want to blame my autism but I feel like I must blame myself. What’s myself and what’s my autism? Maybe the problem is separating the two.

COVID-19 Vaccine And “Looking Disabled”

Dear Diary,

Today I got my first COVID-19 vaccine. A week or so ago I recieved a letter giving me an appointment for around lunchtime today, I was given the AstraZeneca vaccine and it didn’t hurt one bit. My problem however, was the way the woman who vaccinated me made me feel.

I had brought my identification and my letter and I showed up on-time and the person took one look at me and soon asked me what medications I was taking, unwilling to disclose my taking of anti-depressants I said none relevent. She then asked me some other questions getting sightly annyoyed with me despite the fact I’d done nothing, before straight-up asking me “Why are you getting the vaccine?”

It felt very petty and her whole attitude was very insulting. I was wearing joggers, a jumper and had greasy hair and combining that with my age she just asssuemed that the NHS had made a mistake or something.

Knowing that I had to answer her question for two reasons: 1.) She was going to stab me with a needle and 2.) I just wanted it over with.

So I say “I’m autistic” in the middle of the community centre to this woman who then replies that “She couldn’t see it. [Referring I hope, to the diagnosis on my electronic file on her iPad.”

My point is not that I had to say I was autistic, it’s that I was treated with reluctance becasue my disablility is invisable. I’d been properly signed in, I had been given a time-slot, a letter and yet I was still treated like it was me, who was doing something wrong.

So I’m not very happy about all that. Anyway stay safe.

MEDUSA.