To Make A Choice To Try

Dear Diary,

I had a choice today; a simple choice that could make a huge difference in my life.

I’ve been feeling like I don’t want to be here anymore for a few weeks now (not suicidal – just a wish to not exist). A feeling that if there was a magic button and I had a choice to remove myself from existence, I’d press it.

The world has felt bad and I’ve been feeling miserable. My OCD is bad, my self-esteem is bad and my anxiety is through the roof and whenever this happens a simple question goes through my mind “Things are always going to end up like this so what’s the bloody point?”.

I suppose it’s normal to be negative whilst being depressed but it still sucks. Knowing that I’m going to have to deal with my autism related OCD and anxiety for the rest of my life is horrible to think about and it hurts to think about.

Whilst being in this vortex of misery other aspects of your life gets sucked in too – aspects such as your schoolwork, your appearance and the tidiness of your room. As seemingly inconsequential as these three things seem, they all add up and lead to a very depressing situation.

So after all that; my choice came today. My exams are starting in the next week – exams I’m woefully underprepared for – and the thought of doing any studying felt impossible. It was physically and mentally straining to pull out my textbooks and open my laptop. I confess I nearly quit twice and I nearly threw my laptop in frustration.

But I chose to keep studying; and I ended up doing some good revision. Despite every part of me wanting to curl up in my bed and want to die – I chose to do something productive and it has made me feel better. Schoolwork feels that little bit less worrisome and I feel more in control of my life.

I’m still not feeling 100% – or even 50% but it’s a start and after today I want to keep trying.

Feeling Bad

Dear Diary,

Things feel for lack of a better word – weird. My OCD is not great and my depression is suffering right now. I don’t feel right and I don’t know why.

I feel like I’m drowning in uncertainty. I feel like I can’t breath and like any second I’m going to crumble into a billion pieces. My mind feels frazzled due to the OCD and anxiety and I don’t know how to make myself feel better.

I feel almost lost for words. The feeling I feel is that of constant anticipation for something bad to happen despite nothing suggesting that this is true. Maybe it’s the post-lockdown worry, maybe it’s that I’ve got school tomorrow or maybe it’s another thing entirely; the problem is that it sucks.

I’m refusing to make an effort in my appearance. I’m finding it hard to find the willpower to brush my hair and feel no motivation in making myself look nice which for a teenager is difficult to deal with.

Contamination is there but not the worst OCD-related thing that I’ve been struggling with. My main problem is avoidance – I’ve been avoiding touching my scrapbook, my jewellery and certain belongings.

I just want a magic wand to be waved curing me of all my problems. It’s really hard to give a damn about anything right now. When breathing feels like an anticipatory move for an unseen threat coming from my own mind – it’s difficult to do anything except play video games and hope that I’ll wake up the next day feeling better.

I fear my mind is going to break and that I’m going to be sent down a path of anxiety and depression that I’ll never get out of. This of course is nonsense – no emotion can last forever but it’s a fear nonetheless. I suppose that’s common for fears though, they tend to be semi-unrealistic.

It’s late now so I’m going to go and brush my teeth and get some rest. I have no clue how I feel about school tomorrow, but that’s the beauty of autism isn’t it?

Medusa.

Recovering From A Low

Dear Diary,

After my epic birthday I crashed. Not as far as I sometimes go, but far enough to cause disturbance in my life. My OCD and insecurities have been terrible so much to the extent that I wouldn’t reply to an e-mail giving my photo and getting included in the school yearbook…yeah, I’m not doing great.

I’ve not been scrapbooking due to OCD. I bought a bunch of stupid-ass clothes from a shopping site – all of which I’ve returned – because I wanted to be as pretty as the models and I thought that it would make me for lack of a better word “good“. I’ve been struggiling to adapt to the whole gradual school return. I’ve not been keeping track of my planner or doing any real schoolwork. I’m just kind of there.

It’s hard to get out of this kind of low feeling becuase whilst there is so much that I should be working towards or getting excited for – I can’t help but only see lockdown in the future. The pandemic if anything, has made me very short-term.

If I’m being honest I don’t know how to stop feeling so sad. I have no goddamn clue what I should do to get my mind and life back on track. The only thing that I know is that tomorrow is a new day and I’m going to make an attempt for some positive change: Waking up earlier, practicing driving with my Mum, doing some french revision, writing some more of my english dissertation and, finally buying some clothes that I actually like.

Fingers crossed tomorrow will be better. Take care.

Sensory Problems

Dear Diary,

I’ve been having what I think are sensory problems.

My back, face and neck particularly are a soruce of great distress for me at the moment. My back feels especially uncomfortable and it being at a place that I can’t see and touch without a back scratcher or a mirror is only adding to this.

It feels like my back as little scabs on it (it doesn’t) and I can’t “stop it”.

Of course some of this may be due to the fact that I get a lot of acne but even even if I don’t have it bad or it’s not painful – I feel really uncomfortable and distressed.

So over the last few days I’ve been really, really struggling with myself and my sadness but I’m doing better today and this is mainly due to some advice on of the pupil support teachers gave me. I was recommended to contact my autism support and I did, sending an email in my lunch hall and asking for advice/support.

I we since doing that I’ve felt a lot better, very tired after crying for twenty minutes, but better nonetheless.

I’m going to try and get on with my day and enjoy my birthday on Saturday.

I Feel Defective

Dear Diary,

DISCLAIMER: This is going to be a very depressing post. I’m feeling very negative surrounding my autism and differences.

Today I feel bad. I feel guilty for saying this because it’s not very positive but it’s how I am currently feeling and so I’m going to share it. I feel like a mistake of a human being. I don’t work properly. I have OCD, low self-esteem and I have autism.

It’s not even autism that makes me so wrong. My problem is myself. There is no escape from being who I am and it is becoming very difficult to deal with. The autism just adds to it.

I feel like a broken toy in a factory conveyer belt. I was the one mistake in a perfect batch of toys and no matter how hard the factory workers try, I can’t be fixed.

My brain doesn’t work properly and I’m feeling more and more aware of this fact every single day. I just want to be normal and I just want to be able to not be autistic for a day to see if what I’m feeling is autistic or just an average emotion.

My brain just doesn’t work properly. Explaining how or why is impossible – a bit like describing a colour to someone who can’t see. All I know is that there is something wrong with my brain and I can’t fix it.

I want the autism to be erased; like how the toy repairman from Toy Story 2 wipes over the signature of Andy’s name with paint, leaving him perfect. I want to be free to not have to constantly fight or give in to my OCD and I want the chance to be an average person who has the average social skills and an average brain.

It feels never ending today. It feels like I’m trapped in my own stupid brain that does not understand how to be a human. My brain does not work and consequently I do not work and there is nothing I can do except struggle.

But what do you do with the broken parts of a toy? Perhaps you make something new out of it. Or perhaps you chuck them in the bin. Time will tell.

Thanks for reading. I’m sorry if this is depressing. Bear in mind that I do not think there is anything wrong with being autistic or having mental health problems – I’m just kind of the personification of “Don’t let me get me” By P!nk today.

Today I just feel so desperately unhappy and it’s hard.

To Miss Out On A Normal Childhood For Whatever Reason

Dear Diary,

On the 27th of March 2021 I will turn 18 years old – officially an adult and I have very mixed feelings about it. On one hand I’m excited to get birthday presents and cake. On the other, I feel a deep sadness.

The sadness doesn’t stem from the fact that this is my second birthday in lockdown and I can’t go out to celebrate-although that doesn’t help. My sadness is to do with the fact that I grieve the childhood I could have had, had I not had OCD.

I grieve every time I held my breath as a primary school student as I entered my bedroom due to the fear that I’d “contaminate” the room with my breath. I regret never using my iPod as a little girl because I was scared that I’d “ruin” it. I regret not playing with my toys because I thought that I was “contaminated” and would “destroy” my favourite thing. And I regret spending countless childhood birthdays crying, refusing to touch my presents and not enjoying being a kid.

A normal childhood would’ve been so easy for me if I didn’t have OCD; if a few neurological connections between synapses and nerves were different, I could’ve had a normal, happy childhood.

Whether you had mental health problems, family problems, suffered a trauma, were bullied or anything else that stopped you from enjoying your birthdays and your childhood; it can be hard to accept that you’re growing up.

I wanted to be “uncontaminated” and the way I thought other girls were like. I wanted to be able to touch my toys without showering and holding my breath before hand. And now I have managed to deal with my OCD enough to be able to touch my belongings but it was too late.

I’m nearly 18 and I no longer receive toys for birthdays and Christmas’s. I’m nearly 18 and whilst I lack the motivation to play with action figures or dolls – I grieve not being happy when I could have been and when I wanted to be.

First Day Back At School After Lockdown

Dear Diary,

Today I started back at high school. The morning resulted in me being very positive (with a minor dent in my positivity due to catching my appearance in my iPhone camera) and I saw my friend. Additionally I am exempt from wearing a mask – an exemption I ignored until it was stated that we would have to wear our masks in class and I didn’t want to do that, so I got my lanyard out. Things were looking up.

For the first couple hours I happily read in the canteen socially distant from everyone. After a while I had a good conversation with a teacher surrounding a book I was reading. Everything was fine until lunch came and for the first time in many months I was sat down in the freezing cold outside with my best friend eating lunch. Lunch is hard enough on its own with OCD; being cold is unpleasant for anyone; But maintaining a conversation in person that was acceptable, even with a friend, for the first time in months felt like a disaster.

My social skills are at a low. I see my best friend and I say how much I missed them, giving them the latest news and listening to my friend say the same. After that I start rambling about politics, controversial topics and other societal issues because I am incapable of being a seventeen year old girl who is not autistic for five seconds. It reminds me of the time as a child where a friend visited my house and all I wanted to do was plan a book with them despite the fact that we were ten. But I digress, I feel really upset and frustrated with myself.

I want to blame my autism on this. I want to say that the autism made me do it akin to how the devil allegedly corrupts innocent people making them do things they otherwise wouldn’t – but I can’t. I want to blame my autism but I feel like I must blame myself. What’s myself and what’s my autism? Maybe the problem is separating the two.

Feeling The Panic Build – Dealing With Anxiety & Depression

Dear Diary,

I am feeling nervous. For what? Perhaps due to residual stress having done an interview with a university, perhaps from lockdown or something else entirely, the result remains the same. I am beginning to lose it.

I feel the panic in me rising and it’s an unpleasant feeling. I feel like a ticking time-bomb that will go off with any sudden movement and all I can do is try to minimise the damage it will do when it goes off.

I’m worried that when my OCD gets worse, -as it inevitabely does when I get more anxious- I will be too consumed with them to focus on more important issues such as university, school and homework.

It’s moments like this when I hate being me. I am so frustrated that I have OCD, that I have autism, that I am me. I almost wish I could remove my brain temporarily, give it a shake, run it under the cold tap and then plop it back in my skull again. – I don’t quite know where I was going with that but you get my gist.

Being anxious is not cool and waiting for your OCD and depression’s comeback is even less so. I’m currently in my clothes and dressing gown with smudged makeup, drinking apple juice and feeling bloated by eating a tube of sour cream and onion Pringles – I’m not the Hollywood anxious teenager.

I’m going to brush my teeth and go to bed. In the morning I need to figure out a reason to get out of my bed and stop feeling angry at my brain.

COVID-19 Vaccine And “Looking Disabled”

Dear Diary,

Today I got my first COVID-19 vaccine. A week or so ago I recieved a letter giving me an appointment for around lunchtime today, I was given the AstraZeneca vaccine and it didn’t hurt one bit. My problem however, was the way the woman who vaccinated me made me feel.

I had brought my identification and my letter and I showed up on-time and the person took one look at me and soon asked me what medications I was taking, unwilling to disclose my taking of anti-depressants I said none relevent. She then asked me some other questions getting sightly annyoyed with me despite the fact I’d done nothing, before straight-up asking me “Why are you getting the vaccine?”

It felt very petty and her whole attitude was very insulting. I was wearing joggers, a jumper and had greasy hair and combining that with my age she just asssuemed that the NHS had made a mistake or something.

Knowing that I had to answer her question for two reasons: 1.) She was going to stab me with a needle and 2.) I just wanted it over with.

So I say “I’m autistic” in the middle of the community centre to this woman who then replies that “She couldn’t see it. [Referring I hope, to the diagnosis on my electronic file on her iPad.”

My point is not that I had to say I was autistic, it’s that I was treated with reluctance becasue my disablility is invisable. I’d been properly signed in, I had been given a time-slot, a letter and yet I was still treated like it was me, who was doing something wrong.

So I’m not very happy about all that. Anyway stay safe.

MEDUSA.

GIRL WITH AUTISM REVIEWS MUSIC BY SIA

This movie is so bad that you will forget to be appalled at the acting and offensiveness. Also didn’t Sia say she was going to remove the restraint scenes? Because I just unfortunately bought the movie on Amazon Prime to make this review and the restraint scenes where still there with not even a warning as promised by Sia. So that’s another thing Sia has screwed up on – she seems really sorry doesn’t she?

I have just finished watching this monstrosity and I have many different opinions. This movie is sort of incredible in a way. It offends filmmaking, autism and the eardrums all in one go.

First of all the songs are repetitive both individually and collectively, all of the songs have virtually the same meaning and each song contains a sentence which is repeated over and over until you welcome death. This movie features scenes that made me who hasn’t got anywhere near the functionality of the protagonist uncomfortable, so I dare say how people with that level of additional needs may feel watching this.

Another problem to do with the general movie production was the plot. I don’t even care enough to get into the plot it’s your average bad girl takes care of disabled child and becomes good and makes out with hot neighbour – a tale as old as time. But there are so many random side-plots, one in particular ends very dramatically and the main characters never even address what had happened, the characters don’t even know what had happened and other than a dance number including someone from the side-plot – we never see them again.

Maddie Ziegler’s portrayal as an autistic person was laughable at the best of times and cringeworthy at the worst. I have already in previous posts listed my issues with her being cast, her portrayal and how she was instructed to learn about autistic people so I won’t cover that again. I just wanted to assure you that yes it is just as bad as it is in the trailer, just so much longer.

I knew that there was the park restraint scene where Zu (Kate Hudson) restrains Music (Ziegler) down in a way that is extremely dangerous but I had no clue about the one where (Leslie Odom Jr.) sits on her to restrain her. It is weird seeing two adults restrain a child in a dangerous way, it’s even to see a grown woman let a man she doesn’t know sit on her upset sister in her bedroom. That’s just weird for a start and the method of restraining as I’ve stated, can be fatal for people with autism.

I was half expecting this to be from a directional, musical and visual standpoint masterpiece, because what else would make the Golden Globe nominators overlook the offensive and dangerous scenes. But no this movie is truly crap and one can only assume there is a very woke person feeling very happy with themselves, for showing that poor disabled movies are included.

Hope you are all well.

Medusa.