There’s Something Wrong With My Leg

Dear Diary,

A few months ago I realised that my legs (especially the right leg) were weaker than usual. It was annoying at first but mostly dismissible. However it has been getting much worse and over the last few weeks I’ve gone from not being able to go on walks with my family to being completely unable to walk down the street or work.

It’s frustrating to say the least as all I want is answers to what is wrong. I look at people walking and now can’t believe the physics – “how are they doing that?” I think when seeing people walk up slight hills or stairs. Nothing in my body hurts nor are my reflexes poor but that makes it all the more perplexing.

I was supposed to have a schedule. Finish work and then clean my room, get my driving license and then start writing more often as well as doing more hobbies. I wanted to be more independent and more self-sufficient.

However having to pause multiple times whilst simply going up and down my home’s staircase; suffice to say, does not line up with that plan. My autism wants to be better and is angry that I can’t do things. My autism and OCD are only manageable when I am both well rested and healthy.

I have to be rested mentally and physically to function as a normal human being. I have to be healthy in order to function as a normal human being. Having unexplained symptoms that I’m going to have to wait at least five weeks to be diagnosed is not congruent of functioning as my best self.

Every single day is so hard. I’m trying to drown out the OCD fear, the autism-ness and the depression constantly whilst being asked to function as a normal human being and do simple basic shit like clean my sink. Having a health problem adding to that is even more hard.

After my appointment with the doctor today (who was lovely) I have to get a blood test in a few weeks time but he was unable to give me advice other than “take it easy, do what you can and then a little bit more and if that makes things worse, ease off and let us know if the problems get worse.”

I have a driving theory test to go to in early November but I think I may have to delay that as I have no idea how worse this is going to get until then. I don’t think I should be going to driving lessons either as my right leg is obviously the one that controls the clutch and it would put a lot of strain on it.

I’ve been worried about my appointment for days and I’ve barely brushed my hair. I’ve been “contaminated” (giving into my OCD by avoiding the things I like) all week, somehow thinking that after my appointment the cause of my leg weakness would be discovered and treated by some medication I need to take twice daily for a fortnight. I thought after today I’d get to go and shower and “restarting” and being “uncontaminated”.

However I’m currently sitting in my dressing gown feeling sensory overload over the skin and oils on my face and back – upset that I can’t go to the shops and buy myself a bag of chips.

Quick Post: A Lady Went Above And Beyond And Was Kind.

Dear Diary,

Today I went to Edinburgh with my Dad to look at the area surrounding my future university campus. Of course going shopping on Princes Street is an essential part of any visit to Edinburgh so as we walked along – or I hobbled ( calling the doctor on Monday because there is clearly something wrong with my leg ) – I looked at the windows of the various retail stores.

I went into Waterstones where I browsed the aisles of young adult fiction and vietnam-styled flashbacks raced through my mind at the sight of To Kill A Kingdom and From Blood And Ash – two books I’ve reviewed on this blog that will stay with me until I die, due to the sheer volume of cringe.

Anyway I digress, after Waterstones I went straight into Lush on Princes Street, Edinburgh and spoke to a girl who worked there. I told her about how I haven’t been taking care of myself properly and described some of my skincare and hair issues. The lady was lovely and called me “Honey Bun” which after being treated like I was a mature grown-up for the past months since turning 18, I thought was really nice.

The girl told me about the different skincare and hair products at Lush and helped me find the things I needed. I decided to get the Mask Of Magnaminty face and body mask 125g after the lady recommended it. I told her about my hair problems and she gave me two samples: Candy Rain conditioner and Rehab shampoo.

I told her about how I’m going to university at Napier in 2022 and about how I’m having a look around Edinburgh to get used to where I’ll be living after my gap year. She wished me good luck and a great rest of my day.

When I went to the counter to pay she wrote me a note and gave me a Scrubee Body Butter for free – as well of course the two free samples.

I’ve seen waiters, shop assistants and others be not helpful and uninterested in the customer but this lady was truly kind and made my day.

I thanked her for her kindness but I wanted to write this post to share how much I appreciate it, even if she never sees it. Because her friendliness and warmth made me happy and I’m 100% going back there to buy more goodies!

My Lush Haul

What Now? – Being Off Work With No Plans And Growing Anxiety and Uncertainty

Being a grown-up is a hell of a lot less fun than I expected.

Dear Diary,

I’m back writing on my laptop in my dressing gown and drinking a blackcurrent fruit shoot – mind racing a million miles an hour.

I’m trying to locate the cause or reasoning behind this nagging uneasiness I’m feeling and have yet to come to a conclusion. I’m probably embarrased and stressed out that I vommitted at work; I’m probably worried about going back to work in five or so days; I’m probably worried about my theory test and the content I need to learn by then and various other fears; And yet none seem to be the root cause.

I feel like I’m waiting to go back to school at some point and fall back into the routine of being a high-schooler. I’m waiting to be plucked from my new life as a working adult and placed back to where I truly belong, the place I was for most of my life.

Perhaps it’s being off work that is confusing me – (although this week off was desperately needed.) Maybe I’m feeling discombobulated about not following my routine as I have nowhere I need to be. My physical health is very poor; I can’t even walk to my Dad’s car without being extremely out of breath. I may stand still for hours upon hours at work, walking on even-flooring and walking quick short distances and back but these days I can’t walk down the high-street without repeatedly stopping for breath. In my entire life I have never felt this physically unfit.

Whatever the reason; I am lost and not sure where to go from here. I feel like a child playing dress-up, missing the carefree-ness of being a high-schooler (though high-school in on itself wasn’t exactly carefree) and I am scared of being given time to myself.

Food is still bothering me. Textures and hard bits in meats are causing me great discomfort and upset. My OCD is not great; I’m opting to not care about my appearance out of depression and not trying to make myself feel better by wearing my favourite clothes or accessorise.

I guess you could say I’m in limbo. I’m unsure of what to do and anticipating disaster and so are not doing anything productive or beneficial. I’m reluctant to start challenging my OCD or making myself feel better because I feel so damn tired. The idea of redecorating the house before a tornado strikes feels pointless so to speak. I’m just waiting for my tornado – and a tornado will always, always come – in a run-down shack instead of enjoying whatever time I have left in a cozy cottage so to speak.

An Autistic Girls’ First Day at Alton Towers: The Good, The Bad and The Queasy

Dear Diary,

Today I went to Alton Towers with some of my siblings and father. We left very early in the morning – especially since I’d just done a night shift at work – to head off to Staffordshire to enjoy our two day and night trip with both days at Alton Towers and the nights at a Premier Inn nearby.

I was struggling a bit to sleep in the car. I couldn’t seem to get comfortable and was becoming a bit distressed. Much like a toddler having a temper tantrum in frustration about not being able to get the new toy she wanted, I too was about to throw something out of the frustration of not being able to get comfy. In these moments of frustration I become almost like a toddler; I lack perspective and advanced deductive reasoning and want to scream. Eventually I managed an hour nap in a position that could not be described as advisable for road safety but I was strapped in and following the law.

When we arrived at Alton Towers today I was so excited. I almost ran round my family in excitement wanting to express how happy I was and how much I loved them all. This is perhaps not the average behaviour of a neurological eighteen year old but I was happy.

I went on The Blade first and loved it. My head felt wobbly in a good way as I went high in the air and back down again. I definitely want to go on it again tomorrow!

The next ride we went on was less good. I went on with my sisters and at first it was fine but as we were carried higher in the air we also began going round and round and round and I could feel my stomach lurching. I’d had about three hours sleep, not really eaten anything this morning (as I’m fussy about what I eat) and I have middle ear difficulties as I’ve wrote about before on this blog.

The culmination of these different challenges were a disaster on the next ride I went on, which was Spin Whizzer. I know what your thinking reader – why the hell did I go on a ride called spin whizzer when I was still terribly nauseous from the last ride? – and the answer is that I’d never been sick due to a rollercoaster before today and that I also wanted to do what my younger sisters were doing.

After sheepishly wandering off the Spin Whizzer like a drunk Scotsman after a few too many pints; I run behind a bucket (the bins were not the right shape for sticking your head in) as it was the only non public place to go, and hurled my guts up.

I felt better after this and even more so after I’d had my hotdog at lunch (though I nearly hurled it up on the picnic bench after finishing it) after consuming it with what can only be described as the resilience and strength of a naval officer.

Next we went on The Wicker Man which I thoroughly enjoyed despite the very long wait in line. My and my youngest sister are desperate to get some merchandise from the ride tomorrow.

As a good ‘family ride’ we all went on the Congo River Rapids and I bought the picture of us all in the boat for a whopping £10 since my Dad is far too grippy (and perhaps far too wise) to spend that amount of money on a printed out photograph.

I went on The Oblivion which I loved and The Nemesis which I’m glad I’ve gone and bought the t-shirt but never wish to go back for leggings. After a substantial time away from Spin Whizzer I gave it another go with one of my sisters and this time I neither puked nor lived in fear of doing so – although I must admit a slight uneasiness in my stomach stopped me from going on it immediately after again with my sister.

After a quick snack of strawberries, marshmallows and melted chocolate, my family and I made our way to the Premier Inn hotel we are currently staying at. We visited Burger King for dinner (which I’m half-convinced is going to give me food poisoning symptoms in the next half hour) and Spar for snacks such as the Monster Munch I ate whilst writing this post. I of course am yet to get into my pyjamas as I hate having the smell of anything on my pyjamas and as we all know snacks tend to leave crumbs but I shall soon wash my face, brush my teeth and get changed – maybe after some Wine Gums and YouTube videos. I’m next to one of my sisters and currently our whole squad is on their devices with various snacks resting our legs and feet after an adventurous day at Alton Towers.

The castle and the bench area where you can watch the live performances.
Entrance Area of Alton Towers.

First Day At Work

Dear Diary,

I started my first job today and I had a great time! It was weird being a grown up when I’m so used to being the pupil in school but I loved every minute of work today and I can’t wait for tomorrow where I’ll be covering the night shift.

When I got home I was quite tired and I felt very sensitive. When I told my parents a joke that didn’t land and they thought I was being serious – I felt really hurt. I started thinking that they hated me and thought that I was bad. This is a sign that I’m tired and my OCD are causing my brain to malfunction.

I won’t let my own insecurities ruin an all round great day so I’m going to go to bed in a minute and get a good nights sleep!

The Night Before Prom

Dear Diary,

I’ve said goodbye to many teachers who have supported me and whom I genuinely care about. My last day is tomorrow evening where I’ll go to prom, enjoy a meal and get my high school graduation certificate.

I’m nervous for tomorrow but also so excited. I have a beautiful dress, I’m getting my hair professionally done, I have beautiful accessories and makeup and I’m so excited!

I’m currently painting my toenails for the prom and I’m going to choose my jewellery – I’m definitely wearing my Elena vervain locket and my Elena ring as well as some of my Pandora charms.

I have a busy day tomorrow so I’m going to get some sleep. This may be the shortest blog post in the history of humanity but I want to record how I’m feeling.

Take care and wish me luck!

Medusa

The nail polish I’m wearing to prom tomorrow.
The beautiful bow my neighbour made that I’m wearing tomorrow!

University Decision: Post-Making My Choice

Dear Diary,

I’ve chosen a course that in part surprised me. I know that I can excel at it and I am genuinely excited to get started!

Of course there are the wriggling doubts, the fears, the nagging voice in the back of my head whispering that I’ve made a huge mistake – which sucks but is also normal. I got into a fantastic course that may not have been my ‘dream course’ but is something that I love and can’t wait to begin.

So yes with the celebration comes slight mourning – mourning for a S1 girl’s dream and mourning for the countless other opportunities that every choice we make in life limits you to.

But despite some sadness and anxiety; I feel relieved. I have a clear view of what I’ve got to do and how I’m going to do it and that feels really good.

I am very happy and I think that this course will not only be badass, exciting and that guarantees a career; but will also make me happy in life.

Only time will tell but today is a good day and it requires a celebration – one preferably when I’m neither sunburnt or exhausted from adrenaline. One thing is for sure; I can’t wait to get started!

Take Care.

Medusa.

Miss Independent

Dear Diary,

It’s time to start being independent. It’s true, I’ve been over reliant on other people emotionally and in terms of looking after me.

During a phase of about 5 years I didn’t understand what having a family ‘meant’. It’s not that I didn’t have one, I’ve been lucky enough to always have a wonderful family but my brain failed to understand what that truly meant.

So after I realised ( with the help of TV funnily enough ) what it meant to be a family – I started over relying on it.

I’d spent so long not being able to emotionally interact with my family that when I finally learned, I went all in. I over rely on family members and people I admire to look after me. I try and do and belief things that exactly align with what they do and belief because I have a lack of self-identity.

It’s time to start taking care of myself. I’m an adult now and it’s time to take responsibility for the cleanliness of my room, my medication and other aspects of my life. It’s time to start being more independent.

Medusa.

Sleep, Mental Health And ASMR

Dear Diary,

Between school, stress, mental health issues and general life – sleep has been a bit of a struggle and I’m sure I’m not the only one who has been struggiling with it.

After weeks of going to bed late and waking up annoyed in the middle of the night needing to pee – I realised I needed to make some big changes to my life.

A while back I’d heard of a new phenomenon called ASMR (autonomous sensory meridian response) which had been featuring in my YouTube recommended for many a month. Eventually on a tired night I clicked on one and the result of doing so was amazing.

ASMR videos feature the ASMR “artists” doing various diferent “triggers” to create a relaxing tingle that begins at your scalp. The “triggers” include whispers, tapping, crinkling, typing and roleplay; spa, salon, getting your hair cut, sleep clinic and more!

At first that “tingle” sensation was not there for me and I was confused about what all the fuss was about, that was until I found certain YouTube ASMR artists who do “triggers” that are very relaxing and nice. Having to listen to a few different artists in a few different videos to find your ‘thing’ is not unusual and you may end up loving it.

I (try to) listen to ASMR when I’m in my pijamas, have brushed my teeth and whilst sitting on a comfortable chair in my room. I put on some headphones and lie back and de-stress.

More than just being relaxing – I find that sleep comes much easier after I’ve de-stressed using ASMR. I just feel generally more chilled and sleepy. If you have autism or mental health problems like me, or you are just struggling to sleep – ASMR is definitely worth trying out!

A list of some of three of my favourite YouTube ASMR artists are as following:

WhispersRed ASMR – Emma joined YouTube in 2013 and has had nearly 300,000,000 views on her channel in total. She is from London and has a very calming and motherly vibe in her videos and comes across as a really warm person. She does lots of sound therepy and ASMR relaxation.

Gibi ASMR – Gibi joined YouTube in 2016 and has over 1 billion views in total for her ASMR videos. Gibi makes lots of unique ASMR videos and comes across as a kind person that you’d love to be BFF’s with!

Batala’s ASMR – Batala has nearly 100 million YouTube views in total for her ASMR videos and joined in 2017. Her channel is very good for whispers and is my all-time favourite whisper ASMR channel.

Thanks for reading and I recommend checking out the ASMR channels above. Stay safe.

Medusa.

Recovering From A Low

Dear Diary,

After my epic birthday I crashed. Not as far as I sometimes go, but far enough to cause disturbance in my life. My OCD and insecurities have been terrible so much to the extent that I wouldn’t reply to an e-mail giving my photo and getting included in the school yearbook…yeah, I’m not doing great.

I’ve not been scrapbooking due to OCD. I bought a bunch of stupid-ass clothes from a shopping site – all of which I’ve returned – because I wanted to be as pretty as the models and I thought that it would make me for lack of a better word “good“. I’ve been struggiling to adapt to the whole gradual school return. I’ve not been keeping track of my planner or doing any real schoolwork. I’m just kind of there.

It’s hard to get out of this kind of low feeling becuase whilst there is so much that I should be working towards or getting excited for – I can’t help but only see lockdown in the future. The pandemic if anything, has made me very short-term.

If I’m being honest I don’t know how to stop feeling so sad. I have no goddamn clue what I should do to get my mind and life back on track. The only thing that I know is that tomorrow is a new day and I’m going to make an attempt for some positive change: Waking up earlier, practicing driving with my Mum, doing some french revision, writing some more of my english dissertation and, finally buying some clothes that I actually like.

Fingers crossed tomorrow will be better. Take care.